As some of my followers know, my niece Angelina who just turned 5 years old on July 20th was born with Rett Syndrome. Rett Syndrome is a genetic neurological disorder that occurs almost exclusively in girls. The characteristic features include loss of speech and purposeful hand use, occurrence of repetitive hand movements, abnormal walking, loss of ambulation, scoliosis and seizures. The genetic mutation that causes Rett Syndrome was found in 1999 and in 2007 researchers reversed the symptoms of Rett Syndrome in mice models. Funding is for transitional research is crucial to make this a reality for my niece, Angelina and other Rett Angels and families affected by Rett Syndrome. So please join us if you leave in or close to New York City.
"An Evening of Rett Syndrome Awareness"
Saturday, August 22, 2009 from 6:00 to 10:00
240 West 54 Street
New York City, NY
Special Guest Speaker: Dr Anthony Horton, Chief Scientist Officer
International Rett Syndrome
Hey, but that's not all! We will also have Silent Auction, Raffle, appetizers, cash bar, DJ and dancing. All guest are welcome to stay ALL NIGHT and dance after the event has ended.
I am so happy to be planning this event and to be able to use my expertise in a different form.
Hope to see some of my fans there!
Senior Wedding Planner